Tag Archives: follow my lead

The End of Lung cancer awareness Month

As we come into December which brings to a close Lung cancer Awareness Month here in the UK, I was very proud to of been a part of the Roy Castle Lung cancer Foundation campaign #Follow My Lead, going up to Liverpool in August and meeting some lovely people, and telling my story of having lung cancer, I hope some people have come to realise it’s not the end of the world just because your diagnosed with lung cancer, it doesn’t mean it will be easy, or that your going to live forever, but it shows you can have a life even though you have lung cancer. No one knows how long they have, and having a terminal diagnosis heightens your awareness of the people you hear about in the news every day, that go out and never come home, dying in an accident on the roads, or being attacked, like those poor people who died or got injured near London Bridge on Friday, or the earthquake in Albania, our nephew Timmy is in Albania, but thankfully he is ok and safe, my heart goes out to all those who lost their lives in these incidents or any others you hear about. You never know what will happen tomorrow, so don’t let the thought that you might die one day from cancer, stop you enjoying today.

It’s been a bit quiet on the blogging front for me lately, I was hoping to start getting more blogs done each week, but it’s amazing how a quite well behaved three year old grandson can stop you doing so many things and make you so tired, I don’t remember it being like this when our four children were that age, but we were a lot younger too. My sons lovely partner made her family homeless, so he split up with her and took their eldest with him and we’re helping out with their youngest, until he can get a place of his own, so it could be for a few months we’re helping out, just hope our energy doesn’t give up before then. It’s a pleasure having him here, and we run the two of them to school each day, so we’re very busy and it is nice getting involved with our grandchildren, and it takes your mind off the normal day to day boring things, you don’t have a lot of time to think about anything. I’d say it makes you feel young again having a toddler about almost every day, but it doesn’t, I think it makes you realise how old you actually are, but as I said it’s a lot of pleasure too, I’ll let you know how we get on with him and the housing situation.

This is the link to my story if you haven’t seen it already:- https://www.roycastle.org/david-james/, and if you go on the Roy Castle website:- www.roycastle.org you can see all the other stories of people with lung cancer and how they have coped and lived with it, all of them are worth watching or reading, very inspiring. There’s also the comedian John Ryan who wrote a poem and made a video for the campaign, also he went on Sky News and was interviewed and put one of the presenters in her place as she ignorantly said you catch lung cancer from smoking, that’s worth watching too, heres the link for that:- https://www.roycastle.org/i-need-to-correct-you-there/.

Well I’ll keep it short and sweet today, and hopefully I’ll have time to blog again soon, anytime I sit at the table to use the computer, I get a smiley face next to me pulling the chair out, wanting to play too. I open a page for him and he taps away, and he gets the computer to do things I never knew it could, I try to watch what he pressed but he’s too quick, one thing was the curser stayed on the right of the page and as he typed the letters came out on the right and moved left as he typed more, search boxes came up, all these things I’d never seen before, and as much as I try I can’t get them to come up again. I have my unfinished book on here, I just hope he doesn’t reboot the computer to restore factory settings, and all is lost. I’ve emailed my book to myself, just in case. Take care and thank you for taking the time to read my blog and see you again soon, I hope, if our grandson allows, as soon as he’s in bed, we’re not far behind. Don’t be afraid of lung cancer and 100% positive always.

#Follow My Lead

Having just got back from a fantastic holiday in Paphos Cyprus, we’re trying to get back to normal and adjust to the cold weather, no rain just sunshine for 13 days, 23-28 degrees every day, sooo nice, and lots of swimming in the sea, which was warmer than the hotels swimming pool, but I still swam in there too. It really was the relaxing holiday we needed, just wish we were still there.

Sonia and me enjoying the amazing sea at Coral Bay near Paphos, Cyprus, sadly a week ago and now back in the cold damp UK. My next venture into the sea will be at Southend on Sea on New Years Day, or near that date to fit in with Sandy’s shift pattern, we’re doing a sponsored New Years Day dip for Clowns in the Sky.

November in the UK is Lung cancer Awareness Month, and I’ve said about when we went to Liverpool to record my story for a campaign for the Roy Castle Lung cancer Foundation in a previous blog, Steam Trains, Filming and Getting a Bit Philosophical, click on the link if you’d like to read it. Well the campaign is now live and the finished product is quite good, even though I do say so myself, so heres the link for my story:- https://www.roycastle.org/david-james/ If you look at the other stories as well, they are really good inspirational stories of some other peoples experience of living with lung cancer, click to see the website with the whole campaign. It would be great if you could share my story or any of the others so we can reach more people and help them with their experience with cancer, whatever that may be, and give them hope that they can beat it, and to realise that having a diagnosis is not the end, there is life after being told you have cancer.

This is the start of my own video made by the Roy Castle Lung cancer Foundation for their campaign #Follow My Lead, I think it came out really well and am really happy with it, I’ll put the link in for you to watch this and a link for the whole campaign to see all the other videos, they’re all really good and well worth a watch.

I got an email when I was on holiday and knew excatly what it was, but I wasn’t going to show it to anyone else, not until I’d seen it first and on my own. Now I’m well known for nodding off, and a lot more than once on holiday I woke up alone, the other 9 had gone off to do something else, or get ready for dinner. But this time when I woke I had the opportunity to look at this on my own. As I’m fumbling about trying to play the video, the horror that if I like this or not, it’s going out tomorrow and for at least a month, it’s a weird scary feeling, but a little exciting too. Here we go, play. Hang on this isn’t too bad, actually it’s quite good, I’m really happy with it, I emailed Rachel at the Roy Castle Lung cancer Foundation to let her know I’m really happy with it, then I started sharing it with my family, and got so much positive responses from it, I felt really good with myself, reminded me of my party, ‘F**k You cancer!’

Look what I found when I went on roycastle.org, and I’m on there front of their website, there were about 10 videos made on this campaign, and they’re all good, well worth a look. And please share.

Having got back from Cyprus, and our amazing holiday, I woke up to blue skies that we had had every day in Cyprus, but this wasn’t Cyprus in any way shape or form, this is Pitsea south east England, and no hotel pool or amazing clear sea to swim in, and I start radiotherapy tomorrow at Southend Hospital. I’m glad the radiotherapy starts, just to get it out of the way, one thing I’m glad about is that the doctor had this radiotherapy down as urgent, but I was on holiday so the treatment had to wait until I was available, not the treatment or the cancer dictating what was going to happen or when, I was!

The veiw from our window, with scaffolding, definately not Cyprus.

Having the radiotherapy treatment is easier than chemo, and a lot quicker, and with no immidiate side effects, yet, not the dose I’m having anyway. It almost feels like your lying in the lap of a caring robocop nurse, with her head is above you looking down with concern with her one big eye, assessing you, to see if you need a zap of radiation to help save you, or a death ray and you’ll be burnt to dust in a second if your beyond repair. Hopefully Mrs Robo-nurse takes pity on me and see’s a glimour of hope, and gives me the radiation. You can see what I mean, Robo-nurse is looking over you with interest and hopefully compassion, with her arms out waiting for you to lay down on her lap. “Your move creep!”

My new friend Mrs Robonurse. Your move creep!!!!

I’ve had four sessions now, just tomorrow to go then see the Oncologist in 4-5 weeks time, the only thing I’ve noticed with this treatment is some wind from my stomach, which I had had while I was having chemo, but no where near as uncomfortable. My rib is still tender but feels like it’s getting better again, I keep sneezing, but I now sneeze with my mouth open, (just thought you might like to know) as this puts less pressure on my lower left rib, on holiday my daughter asked just after I had sneezed, “Was that a sneeze or a cough?” I explained what I was now doing and she laughed and said “It’s a snough!” (snoff) “A sneeze and a cough, there you go Dad you’ve invented something!” Something the radiotherapy department has in common with the chemo treatment, is how busy this place is, both departments are so full all the time, and the nurse’s seem to work none stop, and yet are always cheerful, some more than others but all have been nice. They have five different machines (Robo-nurses), so you see a different group of nurses as I’ve been in four different rooms for treatment so far, just tomorrow to go, five different rooms or revisiting one of them, we’ll see. Well that’s it for now, so thank you for taking the time to read my blog, and you may of noticed that cancer is not getting a capital letter anymore, I don’t think it deserves it, do you?Take care and see you soon. Don’t be afraid of lung cancer, 100% positive always.